Tuesday 2014-01-28
I was told to have iron today. I said to the nurse that I
just took another test which showed that my iron was sufficient. She replied
that she only follow doctor’s orders which is to give me iron every week. I knew
that someone must have read my file selectively, not only my latest test was
over looked, the date was wrong too.
I have to prepare myself for a hard battle. The whole story
of my iron was relayed to her in details, that I went through 3 protocols, had
another test done after the one she referred to, and according to which I don’t need more iron and produced my own copy of the test result. She took my
copy and talked to her boss, they cancelled the iron.
They have all my relevant medical information at hand, I
looked at them previously, I knew that they can’t be trusted blindly. So for
quite a while I have been accumulating my private file and carry it around with
me for event like today. Even with all this readiness, my blood pressure still
went up. I think the treatment may save me while the process of seeking
treatment may just kill me. What an irony. Today if I didn’t look after my own
affairs, I would be overloaded with iron. My iron saturation is already 63%.
Later the nurse chatted with me, to my or not to my surprise
that she had 3 patients who brought with them 3 different iron protocols which
are different from hers. She had to negotiate
with 3 doctors in order to give patients their correct treatment, including 1
patient she tried to give more iron. I totally empathise with her. It is rather
confusing to have too many iron protocols in one State. It is a nuisance for
nurses and a dangerous practice for patients. It is high time that the science
people take a look at the bloody protocols.
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